Natalie still doesn’t feel well, but smiles for the picture. She looks so much better today. She’s still swollen from the surgery, and has what might be the world’s worst headache.
Category: Pediatric Peri-Insular Hemispherotomy
Day 2: A Residency Visit
Resident Dr. Mumert was in to see Natalie on behalf of Dr. Kestle. We discussed the swelling on the right side of Natalie’s face that is due to the surgery. There were cuts made in the muscle of her right temple and in the muscles she uses for chewing, so swelling can continue and could… Continue reading Day 2: A Residency Visit
Day 2: NTU Evening Update
It was a good afternoon but I think we pushed it too much. The Leal’s came to visit, which was just awesome. Natalie is resting again after getting her “dinner” of Sprite, Oxcarbazepine, Dexamethasone, Zofran, Zantec, an un-named laxative, and Motrin for the 101 degree fever. The… Continue reading Day 2: NTU Evening Update
A Visit from Elliot the Therapy Dog
Elliot the therapy dog came to visit Natalie this morning. Elliot is a Labradoodle who works with Intermountain Therapy Animals at http://www.therapyanimals.org/, he even has his own Facebook page at http://www.facebook.com/elliot.therapydog. Joe is Elliot’s handler, and is a down-right good guy. Natalie was motivated to get up and sit on the side of the bed, then walk… Continue reading A Visit from Elliot the Therapy Dog
Natalie and the Wonderful, Improving, Very Good Day
Natalie’s day 4 NTU evening update – we had a really good day today. We have switched off of the narcotics to a blend of Tylenol and Motrin, and are tapering off of the steroids. Natalie was able to get out of bed several times throughout the day, mostly assisted, but walked on her own… Continue reading Natalie and the Wonderful, Improving, Very Good Day
First Day at Home is a Challenge
Natalie’s Day 6 At Home update: Our first full day at home from the hospital was tough due to nausea. Natalie got sick shortly after the 8AM dose of Oxcarbazepine, Dexamethasone and Motrin; and everything sort of went downhill from there. Anything that went into her came back up within 20 minutes so we couldn’t… Continue reading First Day at Home is a Challenge