Archive for the ‘Uncategorized’ Category

I can’t ask for better kids….

I’m so thankful for my patient and understanding kids. Marisa – thanks for your beautiful picture of Natalie!                

We Got the Okay to Go Home!

Natalie’s Day 5 NTU Update – Dr Walker and resident Dr Bowers from Pediatric Neurosurgery came in this morning to look at Natalie. Dr Bowers just came back with 3 prescriptions in hand and told me we could leave anytime today as long as we coordinate with the nurses. I’m sending a few text messages […]

An Afternoon at Home

We’re home! Natalie has been set up on the couch, has had lunch, and is drawing on a little whiteboard while she controls TV with the remote. This kid is so happy to be home. It’s hard to believe that she’s back so quickly, but we are soooo relieved! Medicine schedule is up on the […]

Day 19, School Starts Tomorrow!

Natalie’s Day 19 Update: We are on day 19 with no seizures, or any signs of seizure activity. She starts school tomorrow, and that will be a big test for us on how well she is doing. We’re still keeping her off the trampoline and told her not to engage in any hard physical play. The […]

Shout-out for Sirsy

We were pretty tickled to hear Sirsy mention our Purple Dash 5k event on their broadcast tonight, then present us a special cover of Purple Rain!  Thank you thank you thank you!